Post Transplant Day 312
+312
Today we resolved the homecare supply delivery saga for Tate. This morning she and I headed downtown to Nemours/Wolfson clinic and hospital for both GI and dietary clinic appointments. This allowed a Florida Dr. and dietician to sign off meaning insurance will pay for this. Tpn/lipids runs about $11,000/week not including all the iv fluids and supplies. So we are grateful! Tates BUN was ridiculously high for her showing considerable dehydration. That was with the tpn/lipids and some IV fluids, but with rationing the iv fluids as I was afraid that would be all we had. Based on todays labs, we never would’ve made it without more support. Tate can receive pedialyte and even water through her J tube on a pump. But she’s been having a lot of pain with it so we’ve not been using it much. She’s way overdue for an exchange once we get back so I’m hoping that will be the Fix. The GI Dr. here offered to look into it today but we decided to keep that door closed to avoid any chance at another hospitalization. That may sound backwards, but it’s where we’re currently sitting as with full IV support, Tate will be fine until we get home.
Nemours is located right on the water. The views are beautiful! Tate also learned that on certain days, miniature ponies come to the hospital to support the kids. We were sad we missed pony day! But how amazing is that!? We succeeded at checking out yet another Peds hospital out of state but are thankful this time it was outpatient and such a quick visit!