February 5, 2025
The last 36 hours have felt like a week. We’re exhausted. Here’s the update….
Monday eve there was a care conference with Tates outpatient primary team.
Tuesday morning we were told we were headed home by Tate’s inpatient team.
Then….the care conference info was conveyed that Tate needed a new line due to a bacterial biofilm contributing to repeated infections. The hope was a slot for Wednesday. Tate had a reaction to her antibiotic.
Tue Eve Tate had an ultrasound to look for vessel availability on the other side of her chest. We learned Tue night that she has a blood clot causing a complete obstruction in her R subclavian vein. She was started on blood thinner injections immediately. Line procedure on hold.
This morning (Wednesday), there was concern over a pulmonary embolism and clotting disorder. Tate needed a peripheral IV placed with ultrasound. CT ruled out the PE but labs tested positive for the clotting disorder. (More tests needed to fully confirm that one.) Lots more discussion has led to concerns that the clot is another source of infection. Treating this is an additional 4-6 weeks of IV antibiotics and is requiring some of Tate’s other meds to be stopped.
Second care conference scheduled for tomorrow (Thursday) afternoon with both Tate’s inpatient team and outpatient primary teams.
This afternoon, Tate didn’t react to her antibiotic.
This is one of those situations where we’re SO grateful to have found this clot the easy way (through a scan) rather than through something catastrophic. This isn’t something that will resolve quickly, but our hope is that it remains stable and doesn’t come with any more surprises. Once again, grateful for so many smart, caring people working for the good of Tate.