March 20, 2024
2 Years +
Tate has been feeling pretty lousy since the weekend. Sleeping 20+ hours/day along with lots of heightened undesirable symptoms. We know rheum disease is amped up but aren’t sure if there’s something more acute piled on top. Much of yesterday was spent on the phone with various departments including over an hour with Tates rheumatologist planning next steps. Most concerning is brain inflammation. So today we hopefully rule out an infection with blood cultures and next up is IV steroids. After that, rheum med changes. We had a GI appointment this morning with another of our favorites and saw our North CCBD family this morning too. Tomorrow is BMT clinic. It’s already been a long and challenging week but we’ve also been reminded who’s in our corner. So, so grateful for those team members. We have some pretty amazing ones.