March 28, 2024
2 Years +
I’ve received a few messages inquiring if all is well. Things are okay…..
Tate is on day two of a three day run of big gun steroid infusions. If you recall…her team had said no more steroids unless organ or life saving due to her increased risk of joint damage. She has just had too much. The brain counts as an organ. Our prayer is these steroids calm all this inflammation down. Last night was rough and brought tears for Tate pain wise.
Drew flew in late last night and his timing was great. I came down with some nasty viral fever, cough, body ache nonsense that has laid me flat. Poor timing for a pastors family during Holy Week. SO grateful for my over 18-ers. Keira took Tate to appointments this morning down at main and Drew took Tate to her 90 minute infusion at North this afternoon so Tim can get all his stuff in order for tonight, tomorrow and Sunday. Not how we pictured the week, but it works.
This is surprisingly a virus I’ve never had and Tate has never been exposed to in our house as she was isolated in transplant the other times it visited our household. Her ANC sits at 0.7 so we are praying she can avoid this and avoid the fever and another admission. Steroids don’t help with fighting infections so the timing of all this is lousy for her as well.