Post BMT +182
+182
Today started out rough with extreme pain and just feeling crummy. It took us a bit to get on top of things with meds, but ended in a positive way. Tate even pulled her ukulele out for a bit. Her hands aren’t working quite like they used to, but she is wanting to try! To top it off, my friend Jessica, who now lives In Nebraska, came to hang out. So great to see her!
Tim left for WY today to spend some time with his mom and Dad. There isn’t a big Peds hospital where they are, so we are not able to take Tate yet in the event of fever with her central line. Hopefully soon! Tim’s dad could use prayers as he’s currently recovering in a long term care facility and took another fall today.
Tomorrow is in person appointments at main campus. Bmt labs and med adjustments. I love this picture of Tate. The best coloring I’ve seen on her in a long while!