Post BMT +162
+162
Day 2
This just might be the shortest admission we’ve EVER had! Unless something grows yet overnight, we are headed home tomorrow!
Tate tolerated pedialyte through her J tube at
5 ml/hr all night. Today we switched to a pre digested formula at 5ml/hr as well and it went well. Tatum is primarily on a liquid diet as it’s all her gut is able to move through. She ate two popsicles today!
We also were able to get in with neurology in two weeks. This is fast! I’m encouraged by their notes as another csf lab from the LP came back elevated confirming that something neurologically is going on. They have a plan for further investigation. We are grateful!
We are so grateful to be going home tomorrow. We missed out on our little mountain getaway with the boys, but have a few days yet before Keira and Drew head back to Milwaukee. It will be so nice to just all be together!