1 year + 37
1 year +37
Today is day 2 of IVIG. We were able to schedule at North campus which is a blessing for lots of reasons. It’s closer, which is nice. The biggest blessings though are the familiar faces who already know and love Tate. To be greeted with hugs and a “Welcome Back” is a little salve on an open wound. We’re missing some favorites but are also appreciating the new ones. The infusions are about 8 hours each day. We added steroids and are praying this all makes a difference.
A little background….Tatum started immunosuppressants when she was 9. She started ivig when she was 10. Her last dose of IVIG was in May of 2023. It was thought that transplant would defeat her need for it ever again as it was being used to fight against autoimmune. Things didn’t quite turn out as we’d hoped. Autoimmune is present again. The IVIG and the immunosuppressant Tate was restarted on are the same ones we started with over 6 years ago. It wasn’t enough then. After exhausting all meds and infusions, we landed at bone marrow transplant.
There are lots of emotions associated with restarting this again. There’s fear that it won’t work and we’ll follow the same pattern. There’s disappointment that despite getting through transplant, Tate is still battling her own body. But through all the muck there’s hope too. Hope that since transplant did get rid of other disease, her body won’t have so much to fight off and will respond better.
Tomorrow is surgery and we’ll be able to shut the door on this long week as we celebrate Easter and new life!