1 Year + 202
1 Year +202
I learned today through rheumatology that there’s another care conference tomorrow for Tate. The plan is to decide on which immunosuppressant medication is being added. Seems like a lot to add a med, but puts in perspective the risks associated with the level of meds Tate is on and how many body systems/specialists have to be taken into consideration.
I heard from pain that I’d be getting a phone call today or tomorrow to talk through admission next week for the pain trial.
Tate slept much of the day. She has windows that feel okay and then the rest not so much. Just feels like her baseline took a few knocks backwards again. Today was PT recertification (after every admission.) Tomorrow is OT, then a trip to Children’s for special care and Intestinal Rehab.