February 4, 2024
1 Year +349
Day 12
It was a little crazy when I saw a two year old memory pop up from today. Two years ago, Tate was inpatient, waiting for her bone marrow transplant, in terrible pain, on dilaudid and struggling with low blood pressures. Same story last night. Held dilaudid a bit as Tates BP was 80’s/40’s. She was really sleepy with low respirations from the opioid burden. Not crazy worrisome yet-they just didn’t want it dropping lower. It looked much better this evening. No changes were made today-just waiting for her IT pump to be increased tomorrow. Tatum is complaining of pain in a lot of places. We’re still praying we get to a much better place with this pump.
Keira and Tim were down today. Tate just really hasn’t felt up for visitors, so it was nice to see some faces that she was 100% herself with. Being admitted knowing it’s going to be an extended stay is a very different mindset than an admission that is much longer than anticipated. We’re getting so close to getting home. Really hoping for just a few more days. This is the hard stretch in an admission. Everyone is feeling the stress of a slower than anticipated recovery/response.
We’ve gotten our primary team nurses the last couple days and nights which is so good for both Tate and I! We both actually can sleep at night when we have our nurses who know exactly what will be needed without me Or really even Tate having to ask. So thankful for them. They make our days here so much better.
Today is world cancer awareness day. It’s been a couple years full of cancer dx in our family. Tate, two grandparents and an uncle just in the last two years. Two currently in treatment. And two sweet littles that we lost. Cancer affects everyone-patients and loved ones alike. Thinking of the fighters, survivors and those we remember.