Post BMT Day +83
Day +83 post BMT
IVIG Day 2 in the books. Everyday seems to bring a few surprises. Potassium held today with the new tpn formula that was delivered and administered last night. Hooray for that!
LFT’s (Liver Function Tests) however, didn’t look great today. Tates enzymes and GGT climbed drastically in the span of a couple days. This could be med related (not as likely with the fast climb,) gallbladder or liver injury/disease. Tate’s G tube was draining fun stuff again today and her stomach pain and related output increased considerably. All this cancels our day “off” tomorrow. We’ll go back again for labs, ultrasound and PT/OT. Stool tests and viral titers pending once again. Tate was started on a med to help prevent gallstones and remove some of the sludge that is likely a by product of all of the above. She’s been on this before and it worked beautifully. Praying it’s the same simple fix this time. Tate had a repeat ECG today that looked much better. The abnormal one was confirmed electrolyte related.
Last night Tate took a bite of cereal and two bites of pasta. All night long, her body let her know how unhappy it was. It’s tough to keep trying when the feedback is consistently negative. We see GI Tuesday. That appointment can’t come soon enough!
Praying for the families of those sweet Texas babies and teacher. Beyond Heartbreaking. Squeeze your loved ones. Life is so precious.