April 3, 2025
Day 63
4/3/25
Tate has had some rough moments in the last few days. She’s taken some steps backwards with pain management and has needed some IV pain med support again.
Today she finished day 3 of high dose steroids and pain team came to refill her IT pump with a little tweak in the formula. Tates IT pump gave us another little hiccup this evening that pain team was quickly on top of. Tates metabolic gene test came back that shows some potential issues with how she metabolizes pain meds. Considering her limited response this admission, it isn’t surprising. What the next steps are will take more thought.
We’ve had court visitors and Medtronic pump reps, therapies and lots of teams stopping by. Tate slept most of today again. Monday afternoon there is care conference #5 this admission to specifically make plans for discharge. There will be lots of follow up appointments and we are adding on an outpatient palliative team. We are aiming for next week but Tates pain needs to start heading in the other direction again.