July 15, 2024
July 15, 2024
Day 4
Check out the potato chip “Ruffles”pillowcase that was donated and brightened our boring Saturday. SO cute!
Tate’s status is about the same. Fever and new blood cultures kept us here another night, but labs haven’t provided any insight other than poor chronic trends. Tate felt worse last night and although Tylenol kept her temp down, her body was presenting with chills and sweats like a fever. We’re waiting on infectious disease and rheumatology today. When we hit this point of no answers, I always feel a little stuck. If I take her home, we’re left to ride/figure it out on our own. But the pull to try to enjoy the simple pleasures of summer at home is strong. There’s a fine line of enjoyment when Tate feels miserable. We will likely just choose to go home with the IV antibiotics. I’m grateful to be given the option. So far though, I can’t get Tate to open her eyes to really assess where she’s at. She felt pretty rough last night.
The first couple of days here, Tate was super swollen and puffy. Her weight was up like 9 pounds with fluids. She wouldn’t appreciate me sharing photos, but her eyes and legs were so swollen. That’s all resolving and she’s looking much more like herself. Shes still sleeping most of the day. The weekend was too quiet. We have a great view of the medical CU campus behind the hospital and it was nice to see all kinds of people on it again this morning.
Here’s a few last camp photos to share. I’m just so amazed by all the big, big hearts willing to support other kids to go to Round Up. Thank You! You are truly changing lives!
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