March 1, 2025
Day 30
And….its March! Hospital life swallowed February entirely.
Today we said “see you later” to Remi and Rachelle as they got to head home. Remi was certain his BFF, Tate should be going with them.
Tate’s nurse and I got creative with making some decorations for Tate’s big #3 transplant Birthday tomorrow. Tatum got mega dose #2 of IV steroids and slept a good portion of the day. Pain is still a beast despite the additional fentanyl patch. We’re working on weaning the iv dilaudid and tomorrow will try spacing from every 3 hours to every 4. Monday will bring pain team back for next steps. Tate will go back to surgery sometime this week for a new central line.
We’ve been planning a special Birthday trip for quite awhile. We have a family wedding in FL March 16 and had booked lodging, plane tickets and was gifted universal studio tickets the week before for Tates Big 18th Birthday on March 13th. Today we sadly made the decision to cancel that part of our trip. Tate and I are still hoping to be able to join keira, Tim, TJ, Drew and Megan along with all the aunts, uncles & cousins on Tim’s side for the wedding. Today, persistence paid off when our non refundable plane tickets were refunded. WIN! Lodging is next. Family time is so important. There’s a lot that will have to fall into place, but we are hanging on to hope that Tate can rally for this trip.