Post BMT +142
+142
Tate was admitted again today. After her BMT appointments yesterday, it was apparent to her team that the neuro and GI symptoms continue to worsen. Needing various disciplines outside of BMT involved, this was the quickest way to hopefully reach some answers. The timing was a little sticky as we were planning on finishing our move out from Brent’s place last night and heading home permanently today. However, after hearing about Tatum’s new balance issues and how unsteady she is on her feet, we were told she couldn’t go home from Brent’s Place which left us slightly homeless. Tim stayed with Tatum last night while I ran home to gather up what we would need for an inpatient stay. We really had nothing left at BP. Homecare had delivered tpn and supplies to our home and other than meds for last night and this morning, we didn’t have even the basics.
We’re now completely out of BP. There is a waiting list, so I am very happy another family can experience the blessings we did while there. I am praying that after this admission she is ready to navigate the stairs at our home or we will once again be a little stuck for a safe discharge with no apartment to go to.
The neuro symptoms are concerning. I am desperately praying that this is a medication issue exacerbated by poly pharmacy. But also know that no matter the findings of this admission, Gods love is greater than my worry. The most intense portion of this journey started last summer. We have spent most of the past year in the hospital. This is nowhere near how I envisioned this summer and we are feeling almost desperate to get home to enjoy the few weeks keira has left. The lost time with her is heart crushing. The upcoming days are unknown just as they were a year ago. The one constant is that there has never been a day we’ve walked alone. Our hearts are heavy and the fear keeps trying to climb to the top. But we have faith and trust and gratitude that the path is already laid.