Post Transplant Day 355
+355
Tate attended an indoor softball practice with her Regis softball team girls, was down at Childrens a couple days for appointments, went to a CCBD teen night at Children’s (center for cancer and blood disorders,) found some giant peeps to squeeze and went to a church youth group party this afternoon. All followed by a 7 hour nap today. It was a busy week. She continues to fight through spreading and increasing bone pain and fatigue. Many mornings start in tears as we’re always behind on pain meds by morning. Shes gotten good at powering through and hiding a lot with a smile. This week we have 3 days of appointments at Children’s followed by testing and procedures on the 27th.
Keira is doing better with her headaches and is really hoping to be cleared soon to go back to work. Her FL Dr. Still hasn’t received her CO CT scan. The challenge of coordination between states! But we have no concerns about it as during this time, her lingering symptoms continue to improve.