1 Year + 197
1 Year +197
Thank you for all the words of encouragement and love and support. This has been a rough time emotionally. I’m so thankful for you all. Things remain about the same. Still no admission date or details for next week. I have been chatting with the NIH (Nat. Institute of Health) in Maryland. They are a research hospital and have a specific study on inflammatory MT8. We never connected with them prior to transplant, as time was short and Tate was just too sick. Tatum is actually quite different than the 22 kids in the study, so I wasn’t sure if she’d fit. But, in contact with the lead Dr, this week, she already knew of Tate and felt they could learn a lot from her and potentially help us. So, if or when we head there is TBD.
But today is about celebrating! I don’t share much about Keira on here as that’s her preference. But today she is 19! The last several years, I’ve been in the hospital on her Birthday. Today, not only are we home, but thanks to a sweet Tates Tribe friend and some of your comments, the girls are going to Jonas Brothers tonight! Please say a prayer for a big dose of adrenaline and extra strength for Tate. Happy Birthday to my beautiful, resilient, Keira and to my dad who share the same day with me as well. Birthday triplets! After an especially difficult year, so grateful to get to squeeze my Keira at home this year!