May 21, 2024

2 Years Month 2

Today was supposed to be a procedure day with anesthesia for dental. But we were scheduled at North campus and it was decided that due to her complexity, Tate needed to be cared for at Main with all the resources available. And in light of this continuing low BP issue, she really isn’t in a safe place for anesthesia anyway. So we’re bumped another month….aye! Only a year from when this dental all started. Dental unfortunately just doesn’t take priority when there’s always so much else going on. Nobody’s fault-just how it goes.

An admission was brought up yesterday during a phone call with one of Tate’s providers.We’ll see how the rest of the week goes. I’ve been working against this all month but am getting close to giving into it, ready to just head to the ER. We are a month into these low pressures, kept going by steroids and IV fluids. The stress of the underlying what if’s that accompany adrenal insufficiency and the source of what is making Tate’s body unhappy is getting a little heavy. Each day I’m hopeful she’ll just be back to her better baseline.

#tatestribe

#gritandgrace

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May 18, 2024