February 11, 2024
Day 19
We WERE all ready to leave today after an increase again on Tate’s IT pump. But…her J tube is now clogged. We’ve been working on it trying all the tricks to get it unclogged to no avail. So, we now stay tonight with a procedure scheduled for tomorrow to get a new GJ tube. This procedure is “easy” from a technical end but Tate has a lot of trauma associated with it. So in our world, this is an emotionally tough one. We’re hoping to still get this unclogged today and catch the Super Bowl at home . But as the day moves on, chancre are greater that her TPN/lipids wouldn’t make it to our house in time for tonight’s infusion which means we stay either way. There’s always so much coordination to transition from hospital to home. Our amazing case managers handle it all. Grateful for all the behind the scenes support .