February 2, 2024

1 Year +347

Day 10

Things feel brighter today. Tate actually slept more last night. The IT pump increases take 24 hours to settle in. The response last night was from an increase on Wednesday. It was increased again yesterday which Tatum should feel tonight. She did well not using the PCA as much yesterday but tonight is having more pain again and is asking for everything she can have including nausea meds. They are convinced she’s in a flare as her pain med needs are WAY above what she needed coming in. And that isn’t including the surgical pain. She hardly says a word about that which speaks volumes. But pain masks pain.

Earlier today I was hopeful that maybe we would go home tomorrow. But with the increase on the pca, it isn’t likely. But who knows what the night could improve. Chronic pain doesn’t want to make changes to her IT pump through the weekend which means sticking around, we just wait for Monday. But pain crises are difficult to manage at home and the last thing we want is a trip to the ER. So, we reevaluate tomorrow.

Broncos cheerleaders came by today and I had a much needed visit from a sweet friend today. Tate was pretty excited at what was gifted to her when I came back to the room. A whole lot of Valentines love. Thank you Kerrie!

We are thankful to feel a bit more hope tonight. And we have a super familiar and loved nurse tonight, which always makes everything better.

#gritandgrace

#tatestribe

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February 1, 2024