January 29, 2024
1 Year +342
Day 6
It seemed like Tate was trying to run a fever all day and tonight her temp is climbing. Major surgery and immunocompromised can be a scary combination. We need prayers that this isn’t an infection starting. I wish so much I could report viral symptoms-but she has none. Tates resting HR has been in the 120’s/130’s and will jump to the 140’s with just an adjustment in her bed. It’s likely the elevated temp. The blessing is that she is here. The fatigue that comes with long nights in the ER would be just so overwhelming right now.
I’m running on fumes. Last night was the roughest yet. Tate just couldn’t get comfortable and was unable to sleep. The stress and emotional drain of processing having hardware implanted that once again changes how you look on the outside caught up. She isn’t yet feeling the positives to the pump which makes Tate question going through all this. This stuff is difficult to process. Especially for a teen.
Narcotics are adjusted each day. We go up on some and down on others. It’s been hard with side effects such as morphine itching and pain that is then breaking through. I’m hoping tomorrow we can just hold for a day.
There was good stuff today too. Tate actually did a little mini food crafting today and we saw some favorite faces. I got snuggles from my sweet little 4 year old friend, which was exactly what I needed. Honestly brought tears. I got to squeeze her mom and dad too. One of our favorite NP’s that used to care for Tate on the pain team stopped by and a favorite main campus childlife specialist came to keep us company. Lots of blessings through the love of other people.