Post BMT +53
Day 115
Post BMT +53
Tate is doing well….but today was a little tougher. More water retention, more GI upset and hyperalgesia (increased pain) from oddly enough, the meds used to treat her chronic pain. But all are just seeming to be par for the course and although kind of miserable, are manageable. Although off the pain pump, Tate has been using the PRN IV pain meds around the clock. She needs to be on oral pain meds for discharge but has to be eating in order to take oral pain meds. Tomorrow we may try a pre digested trickle formula feed through the G tube. Tate also will have IVIG this week. It was pushed from last week when she was so sick.
We are hoping for discharge this week, but there’s quite a lot that will need to fall into place.