April 20, 2025
Blessed Easter to you all! We had a beautiful day where Tate made it to church, naps, yummy food and family movie time. Just being home all together, Drew included, was the highlight of it all. The miracle of Jesus’ endless love for us all through his sacrifice and resurrection brings hope to every single day knowing our most perfect days are still in front of all who love him as their savior.
Coming home after a long admission with more medical than you went in with is a lot! It took a few days, but we have a good routine down and our new normal is starting to feel…normal. This week will ramp up with running down prescriptions that were missed with our last minute discharge, appointments and recertifications for therapies and home services.
There were several who thought just getting Tate home would dramatically decrease her pain. That thought process typically comes from new faces who don’t understand her disease process or have been around for this long journey. Needless to say, that hasn’t happened. But, Tate is getting stronger quickly. Getting up and down our long stair flight every day and night is pushing Tate and she’s doing it! We’re so proud of the smile she can present as she tackles all the things most of us don’t think twice about.
It’s easy to feel sad as we enter another season of proms and graduations, college/life decisions and “future” plans. So exciting for many but so painful for others. I urge you to be sensitive when asking young people about graduation, college/school plans and “what do you plan to do next” questions. Despite how people look, you truly never know what battles they’re fighting or what is next for them. An innocent question can be a continual source of pain.