April 7, 2025
Day 67
4/7/25
Today I secretly believed that our care conference could lead to an amazing home plan and discharge tomorrow. Rooted in a feeling of desperation to get out of here, it wasn’t logical. And that is so far from where we landed. The conference was for discharge planning. With Tates pain only getting worse over this past week, we needed pain team there, but they didn’t make it. Considering she’s inpatient now primarily for pain management…
Tate has been needing more IV meds, has pain in her arms and regular migraines and is sleeping most of the day. Blood cultures were taken this evening. We are hoping for no growth as even positive cultures at this point can’t explain everything.
So often, we have prayed for positive blood cultures. Only a family who has walked this path can understand how positive blood cultures, although super serious and life threatening, have often been our easiest path to better feeling days. But we’re beyond that now. Now it will just add to Tate’s medical burden and make it harder for her body to recover at all.
The last few days have been challenging. Today was a rough one.
Tim and I walked outside of the hospital for a few minutes. There’s flowers blooming! The world keeps moving without you.