June 17, 2024
June 17
It feels like it had been so long since a truly solid “good” day that I forgot the protocol.
Don’t jump in with both feet.
Approach with caution.
Don’t publicly proclaim.
Be realistic.
Tate called it yesterday. “I pushed too hard. I’m afraid I might’ve put myself into a flare.” That remains to be seen, but reality set right back in. It felt really good while it lasted but I forgot and bought into the what if she’s just really getting better mindset. Then the low catches you when reality catches up. I couldn’t figure out why I felt SO exhausted today until I realized it was that emotional exhaustion that transfers right on over to the physical. Tate can’t keep her eyes open today. Pain is making sure we haven’t forgotten that it’s the star of this show. There’s literally no information in this post. Just some real life. Lots of labs coming with Tate’s infusions on Thursday and Friday this week. I never expect much but continue to hope. Tate’s sweet OT, Meg, got into a minor car accident on the way to us today. I got to meet her to give her a hug and see for myself that she was okay….the only thing that truly mattered today…..the people in our lives. Squeeze the ones you love.